Session 4: “No really I am fine.” Exploring the psychosocial aspects in paediatric stoma care
In this fourth and final session we will hear from Claire Bohr, a Paediatric Stoma and Bowel Management Nurse Specialist at Bristol Children’s Hospital who explores the psychosocial aspects in paediatric stoma care. Claire discusses with parents the impact that stoma formation can have on themselves and their children. We also hear from a teenager who articulately describes some of the many feelings she experienced during her illness and subsequent surgery.
- To have an awareness of the psychosocial impact for both parents of a baby or child having stoma formation
- To have an awareness of psychosocial impact for the child/adolescent having a stoma formation
- To understand some of the fears and anxieties experienced by young individuals of living with a stoma
Paediatric Stoma and Bowel Management Nurse Specialist in Bristol Royal Hospital for Children.
Claire worked in the specialist field of paediatrics for over 30 years with 15 years’ experience in Paediatrics Stoma and Bowel Management from neonatal care to adolescents.
Claire was awarded the Nursing times Continence Award in 2008 for work undertaken in developing a Paediatric Bowel Management programme.
As well as a Paediatric representative at ASCN Claire is an Active committee member for the Paediatric Stoma Nurse Group UK working with the group to produce literature such as Stoma Care in schools And Nurseries that has been used nationally and internationally to support paediatric stoma care.
Claire has presented at national and international level, has worked with industry in the development of specialised Paediatric products and literature and is the Co-author of the Global Paediatric Stoma Nurse Advisory Board (GPANAB) to develop the Global best Practice Guidelines.
Something perhaps you don’t know about Claire is that since 2010 Claire has been supporting athletes with para sport, travelling to many international competitions including the Para Olympic games in Rio 2016 and hopefully the rescheduled 2020 games in Tokyo this year.
Session 3: Exploring common indications for infant stoma formation & Stoma Care in schools
In this third Episode of the Discover Series 2. We will first hear from Alison Kennedy who is a Stomaltherapy Nurse working in Sydney, Australia. Alison will explore some of the paediatric conditions that can lead to stoma formation, as well as sharing with us her hints and tips on how to care for a baby or child with a stoma.
Elizabeth Scudamore, a Paediatric Stoma Care Nurse based at Sheffield Children’s Hospital will then offer us a valuable insight into the specific needs of a child living with a stoma may require, to enjoy their time at school.
- To increase knowledge and understanding of some paediatric conditions that can lead to stoma formation
- To identify some practical ways to help manage challenging paediatric stomas
- To understand the complexities of the Paediatric Stoma Nurse Specialist Role
- To identify the specific needs of a Child, their Parents, School and School staff when a child living with a stoma is starting school and how these can be effectively managed
- To increase knowledge and understand of the process of Stoma Care training required when a child with a stoma starts school
Alison qualified as a registered nurse and a sick children’s nurse in Scotland, UK in the 1980’s. Emigrated to Australia 20 years ago and set up home in Sydney and worked as a clinical nurse consultant within the department of paediatric surgery. Alison undertook the post graduate certificate in Stomal Therapy Nursing in 2012 and expanded her role to include caring for infants and children undergoing stoma surgery as well as providing ongoing support once they are discharged home. It is a challenging role but it is one that I love and think I am very privileged to be doing.
Paediatric Stoma Care Nurse at Sheffield Children’s hospital. Liz qualified over 20 years ago with a degree in paediatric nursing. Liz has Community Practitioner Degree. In 2014 she was appointed into current role which encompasses care of children with stomas and bowel related continence problems both in hospital and in the community. Providing care and education and training to patient, carers and other health care professionals. Liz is a member of paediatric stoma nurse group PSNG and has a particularly interest in developing and improving the transition pathway for young adults with stoma and bowel related continence problems.
Session 2: Exploring the concept of siting babies and children for stoma formation
In the second Episode of the Discover Series 2, Gail Fitzpatrick, Lead Nurse for Colorectal Service based at Birmingham Children’s Hospital offers us an insight into how a baby or child should be sited pre-operatively for a stoma. She offers her rationale with regards to conducting this aspect of care and how it can greatly impact on post-operative management of the stoma in an extremely positive way.
- To increase your knowledge and skill in the specialist aspects of siting a baby or child
- To gain valuable insights and guidance with regards to siting a baby or child for stoma formation to enhance your clinical practice
- Identify specific needs of a baby or child when siting for a stoma
Gail works as the Lead Nurse Colorectal Service at Birmingham Children’s NHS Foundation Trust. Since 1993 Gail has specialised in paediatric colorectal, stoma and bowel management. Gail established a 1st National Paediatric Stoma Care and Continence course in 1996, an active member of the Paediatric Stoma Nurses Group PSNG and was awarded the Salts Stoma Nurse of the Year in 2011. Gail enjoys all aspects of teaching, supporting children and families through their medical journey’s by facilitating programmes of care encompassing their social, emotional, educational and health needs.
Session 1: Caring for a Neonate with a Stoma
In this first episode of the Discover Series 2, Emily Hooker, a Colorectal Nurse Specialist based at Birmingham Children’s Hospital offers us an insight into the world of caring for a neonate with a stoma.
- Understand the meaning of Neonate
- To increase your knowledges and understanding of why a neonate may require stoma formation
- Consider the specific needs of Neonatal Care, linking this with regards to Stoma Care for Neonates
- To gain a valuable insight into importance of Community Care for Neonates
I achieved a first degree in children’s nursing in 2014 and since then worked on a specialist surgical ward looking after term and preterm neonates requiring surgery. These surgical procedures involved a range of specialities including colorectal and urology.
My passion for teaching started early in my career through mentorship of students on the ward. I went on to complete the Paediatric stoma care and incontinence management course which is where my ambition to improve stoma care and build on my knowledge of the colorectal speciality began. I developed the link nurse role on the ward and with help from the Lead Nurse for the Colorectal Service encouraged best practice with stoma care on the ward.
In February 2020 I became one of the Colorectal Nurse Specialists in the hospital, in this role I care for patients both in the hospital and wider community with colorectal conditions, problems with bowel management or any urinary or bowel stomas needing appliances. I would like to thank Salts Healthcare for this opportunity to share my specialist knowledge about caring for a neonate.
Delving into the key themes and challenges, Angie Perrin chairs each of the Discover series sessions to ensure important topics are fully covered. As Clinical Marketing Lead at Salts Healthcare, Angie brings a wealth of experience to her role. With years of practice as a stoma care nurse in the NHS, authoring many peer-reviewed published articles, and more recently overseeing the educational resources and Academy courses for nurses in the UK and internationally, Angie continues to make a difference to stoma care.